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UPDATE: More Talk; Slow Movement on Cystic Fibrosis Drugs

March 8, 2021 - Federal Health Minister Patty Hajdu has responded to my October letter asking that the pan-Canadian Alliance Pharmaceutical Alliance be directed to expedite negotiations with the manufacturer of medications that would allow people with Cystic Fibrosis to lead longer and healthier lives. Unfortunately, the Minister’s response is all about process, not progress. 
 
Orkambi and Symdeko have been approved for sale in Canada but have been subject to drawn out pricing negotiations since May 2020. Trikafta became the latest gene-modulating drug submitted to Health Canada for approval in December, and is now undergoing priority review. 
 
While Canadians wait, Trikafta has been approved in 32 countries and is paid for in the United States, the United Kingdom, Ireland, Austria, Denmark, Germany, and Slovenia. 
 
It is unconscionable that in Canada government bureaucracy continues to be what stands between needless suffering and early death for CF patients and the improved and extended lives they are fighting for and are entitled to.
 
Read Minister Hajdu’s letter here:
 
hajdu response 1
Hajdu response 2 


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